I am anxious. Continually overthinking. Always worrying about everything and nothing. I find myself feeling on edge with nerves and sometimes I can’t even remember specifically what it was that was first troubling me. My brain becomes overwhelmed with a million and one different things. My mum tells me I’ll worry myself into an… Continue reading Three Little Birds
I doubt anyone’s parenting journey is the one that they envisaged when they counted down the weeks on their pregnancy app, filled with those eagerly awaited fruit and veg. But when your child has disabilities you have to disregard those annoying milestone emails all together, forget that dreaded red book that the Health Visitor handed… Continue reading A Few Things I’ve Learned As Mum To A (Beautiful & Perfect) Disabled Child
When Brody entered our world just over 5 years ago, he passed all of his newborn tests and was a really content and happy baby. I was completely unaware of undiagnosed genetic conditions back then and the journey we were about to take together. He was, and still is, is a total joy (except when… Continue reading Back When I “Just Knew”
When your child has disabilities, you start to notice as they get older that some products that you’d like to buy just aren’t easy to get hold of – or available at all. And if they are, you can guarantee that there is no doubt a disability price tag attached to it! You know that… Continue reading Products SEND Parents REALLY Want!
How can he be undiagnosed? Didn’t you say that he has autism and epilepsy? Isn’t Global Development Delay a diagnosis? Have they not carried out tests? Isn’t it a good thing that nothing has been found? The well-intended questions above are admittedly slightly draining at times. They are also the reason why this Undiagnosed Children’s… Continue reading Never Knowing Why
Epilepsy is a condition estimated to affect more than 500,000 people in the UK, including my 5 year old son Brody. Brody’s epilepsy makes me question a lot of things. The smallest of movements, memories pre-diagnosis and even laughter. It can really play on your mind when you’re not sure if something is a… Continue reading Is It A Seizure?
There’s that saying you’ve no doubt heard… “you meet one person with autism; you meet one person with autism”. Sometimes I think that only those who really know someone with autism get how little others understand this. That not everyone who has autism has the same symptoms or traits. That just… Continue reading Our Autism