Epilepsy is a condition estimated to affect more than 500,000 people in the UK, including my 5 year old son Brody. Brody’s epilepsy makes me question a lot of things. The smallest of movements, memories pre-diagnosis and even laughter. It can really play on your mind when you’re not sure if something is a… Continue reading Is It A Seizure?
The realisation of how valuable speech is has been brought home to me in a new way recently as our nearly two year old daughter, Sydney, is a complete chatterbox. “Drink” she proclaims. “Sore” she says when she hurts herself. And then I hear her trying to sing along to things in the back of… Continue reading The Guessing Game
There are so many simple things that you are all too aware can be taken for granted when you’re a parent to a child with disabilities. Just one of them is being able to support yourself sitting upright safely and comfortably so that you can enjoy basic fun things like a bath or paddling pool.… Continue reading Tom’s Splashy Adventures – Firefly Product Review
Every so often, something will happen to highlight how delayed Brody is either cognitively or physically. And every so often it catches my breath or punches my gut. But the dreams I once had at night where we had conversations – the ones where I’d wake up and for a brief moment think that he… Continue reading Acceptance