How can he be undiagnosed? Didn’t you say that he has autism and epilepsy? Isn’t Global Development Delay a diagnosis? Have they not carried out tests? Isn’t it a good thing that nothing has been found? The well-intended questions above are admittedly slightly draining at times. They are also the reason why this Undiagnosed Children’s… Continue reading Never Knowing Why
Epilepsy is a condition estimated to affect more than 500,000 people in the UK, including my 5 year old son Brody. Brody’s epilepsy makes me question a lot of things. The smallest of movements, memories pre-diagnosis and even laughter. It can really play on your mind when you’re not sure if something is a… Continue reading Is It A Seizure?
There’s that saying you’ve no doubt heard… “you meet one person with autism; you meet one person with autism”. Sometimes I think that only those who really know someone with autism get how little others understand this. That not everyone who has autism has the same symptoms or traits. That just… Continue reading Our Autism
Courtesy of social media and that mum guilt that is instilled in us all from the very second our children are born (gotta love it); I don’t doubt that there are many mums out there who don’t feel the pressure to be the perfect parent. The moment your child enters this world, overwhelmed, you realise… Continue reading I Am Not Super Mum
The realisation of how valuable speech is has been brought home to me in a new way recently as our nearly two year old daughter, Sydney, is a complete chatterbox. “Drink” she proclaims. “Sore” she says when she hurts herself. And then I hear her trying to sing along to things in the back of… Continue reading The Guessing Game
10-12th March 2017 marks Disabled Access Day in the UK and whilst it’s a great opportunity to shout about all the great accessible places that we know and love, it also gives us a platform to highlight all of the problems the disabled community face because of inaccessibility. The Cambridge Dictionary defines inclusion “as the… Continue reading Raising Awareness Of Changing Places Toilets This Disabled Access Day
As Brody gets older, his disabilities become more visible to those around us – wearing nappies, sometimes dribbling, noises instead of words, his cognitive ability and movements. And of course there is his wheelchair. Last year Brody outgrew his buggy and we found ourselves at wheelchair services being measured for our first wheelchair.… Continue reading Reactions To My Son’s Wheelchair