Back When I “Just Knew”

When Brody entered our world just over 5 years ago, he passed all of his newborn tests and was a really content and happy baby. I was completely unaware of undiagnosed genetic conditions back then and the journey we were about to take together. He was, and still is, is a total joy (except when… Continue reading Back When I “Just Knew”

Products SEND Parents REALLY Want!

When your child has disabilities, you start to notice as they get older that some products that you’d like to buy just aren’t easy to get hold of – or available at all. And if they are, you can guarantee that there is no doubt a disability price tag attached to it! You know that… Continue reading Products SEND Parents REALLY Want!

Never Knowing Why

How can he be undiagnosed? Didn’t you say that he has autism and epilepsy? Isn’t Global Development Delay a diagnosis? Have they not carried out tests? Isn’t it a good thing that nothing has been found? The well-intended questions above are admittedly slightly draining at times. They are also the reason why this Undiagnosed Children’s… Continue reading Never Knowing Why

Is It A Seizure?

Epilepsy is a condition estimated to affect more than 500,000 people in the UK, including my 5 year old son Brody.   Brody’s epilepsy makes me question a lot of things. The smallest of movements, memories pre-diagnosis and even laughter. It can really play on your mind when you’re not sure if something is a… Continue reading Is It A Seizure?

Our Autism

There’s that saying you’ve no doubt heard…   “you meet one person with autism; you meet one person with autism”.   Sometimes I think that only those who really know someone with autism get how little others understand this.   That not everyone who has autism has the same symptoms or traits.    That just… Continue reading Our Autism

I Am Not Super Mum

Courtesy of social media and that mum guilt that is instilled in us all from the very second our children are born (gotta love it); I don’t doubt that there are many mums out there who don’t feel the pressure to be the perfect parent. The moment your child enters this world, overwhelmed, you realise… Continue reading I Am Not Super Mum

The Guessing Game

The realisation of how valuable speech is has been brought home to me in a new way recently as our nearly two year old daughter, Sydney, is a complete chatterbox. “Drink” she proclaims. “Sore” she says when she hurts herself. And then I hear her trying to sing along to things in the back of… Continue reading The Guessing Game