Hello Epilepsy

When your child has epilepsy, it is a constant weight on your mind. Without fail, the moment that weight eases off, a seizure will happen – just to make sure you know it’s still there. It’s thoughtful like that.   Brody had his first (six) seizures (that we know of) when he was 21 months… Continue reading Hello Epilepsy

Silence Is Not Golden

“What’s your name?”   “Oh – he’s not a talker”.   Forced smile. Remind myself – they are just being kind.   That’s usually my standard response.   Sometimes it’s misinterpreted – fair enough really, I doubt they’d want the whole story, nor can I be bothered to tell it – and followed by another… Continue reading Silence Is Not Golden

Wide Awake Club

According to the Mental Health Foundation, sleep is as important to our health as eating, drinking and breathing. Not only that, but poor sleep is linked to physical problems such as a weakened immune system and mental health problems, such as anxiety and depression.   Well, that’s just great isn’t it? – because for many… Continue reading Wide Awake Club

We stick together, we can see it through ‘Cause you’ve got a friend in me

Crying is pretty much as regular an occurance to me as blinking these days. Whether it’s tears because I am tired or annoyed that life dealt my boy a difficult deck of cards. Or because I am overjoyed that he is managing to sit himself down on a slide for the first time, instead of… Continue reading We stick together, we can see it through ‘Cause you’ve got a friend in me

Undiagnosed – A Life in Limbo

Friday, 29th April 2016 is Undiagnosed Day. Syndromes Without A Name (SWAN) UK are a charity that offers support and advice to families with children who have undiagnosed genetic conditions…   Until we had Brody, I lived in a disability free bubble. I admittedly didn’t spend much time thinking about disabilities and I certainly didn’t… Continue reading Undiagnosed – A Life in Limbo

A Special Kind of Guilt

A Mother’s guilt is something else isn’t it?   Ever since both of my children took their first breath, it’s been there. Staring me in the face when one of them fell down some stairs and fractured their leg at 10 months old (cast came off today!), invading my head space when they have chicken… Continue reading A Special Kind of Guilt

Where to begin…

I’ve been thinking of writing a blog about life with Brody for a long time. So much so, he is 4 next week and when I logged in to Word Press (I wasn’t aware I had a login), there stood an empty blog about a mummy and her one year old…gulp. I know I wanted… Continue reading Where to begin…